Tuesday, June 2, 2009

the beginning~

I decided to start this blog to document the process I've been through and will be going through to get these lesions removed from my eyes.
I've always known that I had high cholesterol. Its been high since I was a teenager. I also knew it wasn't because of my diet. Both of my parents have/had high cholesterol and I was the lucky one to inherit it. Generally I managed to keep it at around 250 until I was 35 years old. Then, what seemed like all of a sudden, I gained weight, and my cholesterol shot up to 329. Not good! I started taking Lipitor and it came down but then these lesions started forming around my eyes. I didn't connect the dots until around 4 years later when my doctor told me the lesions were Xanthelasma and it was caused by the cholesterol. He said that maybe the Lipitor would help keep them small but he didn't really know. Time passed, and I was switched to Crestor. My doctor wanted me to take 10mgs but I had awful side effects like shoulder and leg pain so he dropped it back to 5mg. It brought my cholesterol down to around 240ish but the Xanthelasma kept growing. My PCP suggested I see a plastic surgeon since I wanted them removed. The first plastic surgeon I went to looked at my eyes, told me its 100% cosmetic (as I knew...) and that he would try to get authorization from my health insurance but they would likely deny it. He also explained that without insurance, I would have to pay for his fee, the facility fee and anesthesia. He gave me the option of having it done in his office with just a local as a cost cutting alternative. Okay. I went home and waited for the call from his surgical coordinator. 4 weeks passed and I heard nothing. I called her and she said she had lost the paperwork but would find it and take care of it. Another 3 weeks, and still nothing. I decided they weren't the office/surgeon for me. Meanwhile, my Xanthies were getting bigger.
About a year later, I went to see a dermatologist. He said the Crestor should reduce the size and that he would just leave them be. Ha! That was easy for him to say. He didn't have these ugly yellow plaques on his eyes. I never went back to him again either.
My third try was about 6 months after the dermatologist. I figured I'd try another plastic surgeon. This guy told me "Sure, I'd be happy to remove them for you...." and then gave me the fee just to do the bottom ones. I almost fell off the chair. $3000.00 for just the bottom lids, and I would still have to pay the facility fees and all. I left his office stunned at his price and decided he wasn't the surgeon for me either. 2 weeks later, his secretary called and asked when I wanted to schedule the procedure. I laughed and told her "when I hit the lottery."!
After seeing 3 different doctors, and still no result, I had kind of convinced myself that I was destined to have these things forever and I would just find makeup to cover them. That plan actually worked for the past 3 years. The top lids were easy to cover with coverstick and eyeshadow. The bottom lids were a little harder to cover. All the while, they were getting bigger! I also figured out that if I got a tan, they didn't show up as much. Needless to say, I stayed tanned as much as I could.
That brings me up to the present. Hope this hasn't been too boring so far!
In April, I asked a friend who knows a doctor if he would ask that doctor about my Xanthies. He did and we got the name of a doctor that was close by. I didn't get my hopes up until I went on his website. This guy is an Occular Plastic Surgeon. An opthamologist AND a plastic surgeon all rolled up into one guy!! Wow. I had never thought of going to an eye doctor. I called and made an appointment for a consult. On May 5th, I went and met Dr. L. He looked at my eyes and said "Sure, I can take care of those for you..." A real funny feeling swept over me. I'd heard that before... He explained the procedure to me and said the biggest obstacle is getting insurance to pay for it but that they would try. He called his surgical coordinator in and we all talked about my insurance plan. Let me tell you, I have a very basic EPO plan with a regional carrier. I didn't get my hopes up too high on this being approved. However, since my Xanthies were quite large and I was no longer able to cover them up, I told Dr. L and the surgical coord. that I would be willing to pay out of pocket to have this done if necessary. Dr. L said lets talk to your insurance first and then we'll explore options if we have to. Gee. This guy sounds either really uninterested, like the first plastic surgeon I saw or really confident. At this point, I couldn't figure out which, but I liked him. Yeah, you read that right. I liked him. Not in a funny/weird way, no, not like that. I've worked around doctors for 25 years and I'm not the best patient. I've had my share of doctors that I just didn't connect with but Dr. L seems to be one of the good guys so in my head, the really confident option won. I decided before I even left his office that whether my insurance paid or not, I was having this done and he was the guy to do it.
So, I went home to wait--again. This time the call came exactly 7 days later. My insurance had approved my surgery and all I would have to pay is the out patient surgery copay of $250.00. Okay... I was stunned. Stunned into near silence. As we all know, Xanthelasma removal is cosmetic. Insurance doesn't cover cosmetic surgery. OR... maybe I was just under that impression because that's all I had been told for so many years. Once I got my speaking capability back, I told the surgical coordinator to go ahead and schedule it. I'm ready! 4 days later, I got the paper work in the mail. I had to go to my PCP to get a pre-op physical with EKG and if he said I was okay, the surgery will be a go!
On May 23rd, I had the pre-op. My PCP thought it was great that I was getting them removed, and gave me a clean bill of health, except for the cholesterol and smoking of course. With that hurdle out of the way, I moved on to thinking about taking time off from work and getting everything ready. I'm self employed which means I work a lot of hours and a lot of people depend on me. I had no idea how much time was going to be needed so I went to the Internet to research this surgery. Guess what... there is no information! Sure, lots of websites tell you what Xanthelasma is, and where it comes from, but in all my searching, I never found anything about what it was like to have them removed. Thus, the idea for this blog was born.
On Monday, June 1st, I went for the pre-op visit with the surgeon, Dr. L. Once again, the surgical coordinator came and talked to me to have me sign the consent, and she gave me pre-op and post op instructions along with a cute bag that had bandages and gel packs (the kind you can freeze) and eye covers and tape. She explained what would happen from when I get to the surgery center to the time I leave. She also informed me that my eyes will be bandaged and that I cant take the bandages off until the next day. (what...??!!!!) Then, I went into the room to see Dr. L. He asked me if I had any questions. I asked him how long it would take to do the removal, he said about an hour but he really didn't know because every case is different. He said my eyes would set the time. Okay. I asked him about pain; he said I'll be in twilight sleep so I might hear music or talking but I wont feel anything and of course I would be given a local anesthetic. I nodded and then asked about pain afterwards. He said I shouldn't have any. Okay... I'm good with that. He looked at my eyes again really close and said that normally they like to hide the incision in the crease of the eyebrow but in my case, on the upper lids, my Xanthies straddle the crease. That means they are on both sides and kind of all around. (yeah, I knew that!) He said the bottom shouldn't be a problem because the scar would just blend in as a wrinkle. He went on to say that once he removed the lesions, he would see where the remaining skin fell and then go from there. He told me that Xanthelasma infiltrate into the skin so you cant just peel up the skin and scrape out the yellow stuff. You actually have to remove the skin completely to get rid of these things.
I left the office feeling pretty good but also starting to get nervous. All kinds of thoughts ran through my head. Good and bad. I was either going to be pretty again... or my eyelids wouldn't fit right anymore... that kind of stuff and a bunch of other things. I wont bore you with my craziness on that.
That brings us up to today. The night before the big surgery! I'm a little anxious about the whole thing. I got all my work caught up (not an easy task) and cleared my desk. My oldest daughter came over so she could go with me and be with me afterwards. I'm sitting here typing this while she is cooking dinner. She's going to stay with me until Friday evening when she has to go back to work and then my other daughter will come and stay over the weekend. I think I'm all set---maybe....
As for my plans for this blog, I will try to be detailed and descriptive and include photos of my progress. This may be a bit too much for some, but I really wish I had found something like this online when doing my own research. My goal is to help anyone else looking to have their Xanthies removed and let them know what it will be like. I'll tell you in advance, I'm a lousy patient and get irritable when I don't feel well.
More tomorrow....
In the mean time, here is my before photo. Pretty little things aren't they...?

20 comments:

  1. Hey best of luck....I also have these but have not yet investigated the cost of getting them removed. I too was told (from my Kaiser Doc) that since it's cosmetic they wouldn't cover it.

    You don't mention this in your blog posting but did you try any home or store bought remedies? I assume that if you did, they didn't work but I was kinda wondering about the light acid peels and if they might be effective, of course putting acid anywhere near your eyeball might not be a 100% smart idea granted.

    Steve

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    1. There are some options to xanthelasma removal.

      Unfortunately it is a cosmetic procedure but it should not be costly.

      With the new techniques the risk of recurrence are very low now!

      http://www.akronics.com/clarker-cosmetic-applications/xanthelasma-removal

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  2. Steve,
    I opted not to try any acid peels or any other home remedy because my lesions were fairly large. I could only picture total failure and what my face would look like with acid burns on it! For me, my only option was the surgery and I'm very happy that I did it!

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  3. I am in the same position you were in when you decided to have those ugly spots removed. So, I found your story was very enlightening. But, how was the intervention and, more importantly, are you happy with the results? Do you think the intervention was worth it? We are now in April of 2010 and I would like to know the outcome?

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  4. Hi Suzanne,
    I definitely think going the surgery route was worth it. As I said above, it was really the only way for me. Sure I have had some speed bumps along the way but it is a work in progress and for the most part, I am happy with the results. I still have more to do but I am looking forward to the end result. I just posted an update for today with some more details~

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  5. Thank your for sharing your story. I have the same problem and just made an appt with a Dr who specializes in eylid and facial plastic surgery. Without even checking my insurance they told me right away on the phone that it is most likely cosmetic and would not be covered by insurance. Do you still have paperwork from your physician that lists the diagnosis code they used to get yours approved/paid through insurance? I would like to go in with as much info as possible to my appt and hopefully not end up having to pay out of pocket. Thanks for your help!

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  6. I have had mine removed twice. Unfortunately, it is growing back and will need another removal. Both times have been covered by insurance, and both with a Dermatologist. In both cases, they (2 different doctors) used two different methods for removal: the first used a peel type treatment, which does leave a mark; and the second, cut it out right in his office. I had a local and looked like I had been in a fight afterwards! From your own adventures with doctors and insurance, you have probably also figured out keywords to get insurance to cover it. Reduces peripheral vision, seems to cause eye to tear more ... I hope yours turned out great. Oh, the time for my regrowth was about 2 years, and it is in a slightly different spot.

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  7. Karen:
    My physician has suggested trying Crestor to reduce my "Xanthies", but wonders if that will help because my cholesterol is only slightly elevated. Your thoughts?
    What can you say about them growing back? In other words, does surgery only act as a temporary cure?

    Gary

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  8. Just found your blog and have to say Thanks . I'm from UK and in the process of looking into surgical removal and have gone as far as phoning and inquiring price and approaching my Doctor for a referral. That's where it all stops. Am a bit chicken at the moment but will psych myself up and go in the next few months. Mine is not due to high cholesterol so dont really know where it came from but am very interested to know how you've got on and what the surgery was actually like.

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  9. I found this page and thought I would add my story also..I too have these ugly marks on my eyes and had them removed about 18 months ago, bandages on eyes for whole week..(the doctor did not tell me they were related to cholesterol and eventually heart disease),but mine have grown back and a few more..so im off to another GP for further advice..Thank you for everyone's story.
    Shazza-Australia

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  10. I have had a small Xanthie removed about a year ago very successfully. Just a local anaesthetic and a nick and stitches. Unfortunately my cholesterol situation hasn't changed and I now have 3 little ones on both eyes above and below. I'm going to have to pay another visit to the surgeon. Fortunately I think I'm fully covered by medical insurance, even if it is cosmetic.

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  11. Aaaah! What happened? How did the procedure go? What was your recovery time? How are you doing today? Details! Details!

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  12. What ever happened? How did it go? I have my surgery in 2 weeks and I'm nervous about scaring my face in any way, not that I'm that vain it's just like trading one ugly mark for another. Ugh!!! I'm so glad you wrote your blog, it would be super helpful if you let us know how the end result turned out. It's almost like that joke , how do you keep an a**ho*e in suspense ... LMAO... Thanks for sharing anyway...

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  13. Your blog like to have good information about plastic surgery. Nice for the people who want to build their career on this field, there so many good plastic surgeon cape town already. Thanks for the good information and elaborating the matter.

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  15. Hi Dr.Itua, I would like to know what to use to remove xanthelasma on my upper eyelids ? 2nd question my daughter got pregnant and through one of her Dr. Appointments they discovered that she has herpes and is deviated do you know of something for her to use after she has her baby ? Thank you and God bless.

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  18. It brought my cholesterol down to around 240ish but the Xanthelasma kept growing.My PCP suggested I see the best plastic surgeon in cape town since I wanted them removed.

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